Community

What is Lorenzo's oil?

Lorenzo’s Oil is a combination of a 4:1 mix of oleic acid and erucic acid, extracted from rapeseed oil and olive oil designed to normalize the accumulation of the very long chain fatty acids in the brain thereby slowing the progression of adrenoleukodystrophy (ALD). It is specific to ALD and is NOT designed to be used to treat other leukodystrophies nor Multiple Sclerosis.

In the United States, initial start and consent to use the oil needs to go through either Dr. Gerald Raymond or Dr. Ali Fatemi (see contact information below). Some medical insurance companies may provide coverage for the oil, but others do not because it is still considered to be an experimental drug by the Food and Drug Administration (FDA).